Discussion about this post

User's avatar
Siebe's avatar

It's funny how I'm nodding along throughout the whole article, but then realize I just wrote an article arguing something different - the necessity of an outside game. I hope it's okay to share even though it's not about emerging technology, but the problem I'm trying to address is a lack of basic research into my disease (ME/Long Covid).

I'm curious if you or Todd think I'm wrong, or if some categories of issues require an outside game in addition to the inside one. Or can a strong enough inside game achieve basically anything?

Citing from my post:

> Last week, German patients with Infection- Associated Chronic Illnesses (IACI, such as ME/ CFS and Long Covid), held protests nation-wide. The protests were very well-attended, were successful in generating a lot of media attention, and were crucial in generating one of the biggest ME/CFS victories ever: a €50 million/year research program for IACIs. [..]

> I believe protests are very important to achieve our goals, because I subscribe to a view I call power realism: by and large, change happens because the coalition pushing for change has enough power to overcome opposing forces and institutional inertia. This was necessary for AIDS and it’s necessary for IACIs. Politicians try to win votes by serving powerful coalitions and cultivating positive media attention. Bureaucrats try to further their careers in a similar way. Funding needs to come at the cost of something, which means opposition that needs to be overcome.

> An inside game - cultivating relationships with policymakers, sharing knowledge, making arguments - cannot achieve much without a strong outside game. The IACI community has definitely tried an outside game, and I have an enormous respect for every organizer and participant that has fought for the cause. But they have faced large obstacles, have had little support, and haven’t achieved the necessary sustained pressure.

No posts

Ready for more?